The presentation showed that getting to a national personal health record is a long term project that took years of preparation and experimenting (started in 2002). The health records is nationwide and products can obtain a compatibility certificate when they are proven to connect to the central system properly. The architecture of the personal health record is based on IHE profiles. The compatibilty certification has three levels: create, read and write. 123 IT products are already compatible with the system (including EMR, IHE interface, ambulatory physician softwares, lab information systems).
Both patients and healthcare providers have a smartcard allowing access to the sytem for identification and authentication. Patients have an internet account with a single use password deliverd to their mobile phone to access their own data.
In France, the DMP account is optional for the patient. It will be created together with a healthcare provider. The patient grants permission for access by physicians, departments or institutions. All information is available to the patient but it is possible to lock certain information until after a certain event. For example, if bad news is included in a report, the report can be blocked until after a personal consult with the patient.
By now about 380,000 patients have a record which is still modest but shows a steady growth. This modest usage is partly explained by the fact that no public marketing campain was undertaken yet.
Below, the official information and abstract from the program are provided
SA5: Success Story IHE France
The French PHR: The Creation, Usage and Lessons Learnt With a National e-Health Record
Francois Macary, Responsible for Semantic Interoperability, ASIP Santé, FranceAbstract
This presentation summarizes the different steps in the national Personal Health Record project (DMP in French stands for PHR): regulation and legal adaptations, standardization activities, design of the framework, build of the solution, promotion and support towards healthcare providers and health IT vendors, certification of the interoperability of Health IT solutions. The presentation shows the interactions that this project has had back and forth with IHE all along the way, and draws some lessons and perspectives for the future.
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